"I will praise the one who's chosen me, to carry you"
-Selah: I will carry you

Sunday 28 April 2013

His room, as it was meant to be.... just for a while

Over the past few months, I've read a few blogs/articles from women who say that they "make time to cry".  Until this weekend, I didn't understand it.  How can we make time to cry? The grief wave hits when it wants, hard, seemingly randomly- sometimes there's a trigger we can recognize, sometimes there isn't....but to decide when and where to let the grief win? How does that work?  Well, I found out, on Friday afternoon.

We decided last week, that maybe it was time to redecorate the nursery. You may remember I blogged about it a while back, and it has been through my mind several times since.  We got talking about how to increase interest on the flat (we are trying to sell) and decided that maybe we should repaint the nursery to a more neutral colour. Next thing, it was decided. We were doing it. Simple as that-practical-got to be done, no looking back. Decision made. And so followed a week of build up in my mind. How would I cope with doing this? Was I ready? The usual contradictions- it's only paint...but it is so much more than paint. It's the memories of painting it. It's HIS room. But, because it is his room....I am worried about bringing another baby home to it anyway...but there isn't another baby coming yet...but anyway, we want to sell and so it must be done...but that means going through all the drawers, all the stuff....all his stuff that is his but never was his. Round and round in circles.

I decided that in order to make it through this, I needed to finish it.  I needed his room to be just how it was meant to be...just for a while.  I needed to fix it in my mind, take some photos, and treasure the memories of choosing that scheme, making it happen, and the joy, the excitement, of planning our first nursery.  I needed to complete the photo diary we started almost two years ago.  So, the cover came off the cot. The crocheted blanket my mum's friend made came out, the baby changing mat, the light shade we never got to hang...the classic Pooh bear teddy we bought came out of his box for the first time.  I sat and held my boy's bed, imagining it was him. Rocking like a crazy lady, loving my invisible boy.  I talked to him, I wrote to him. I squared it with him. He's a big boy now, he's too big for whinnie the pooh and baby colours.  This doesn't mean we are forgetting him, but mummy needs to do this now.  I set aside my time to cry. I had my moment, and then it felt ok.

I felt peace, as I tore off the first piece of border, as I started to clear out the drawers.  As I looked at all the "stuff" that's been hidden from view for 19 months.  The stuff that I hoped by now would have been needed again.  The first punch in the gut came from an unexpected place....a lovely box of baby bath time products, and a six pack of wipes...both bought on sale, stocking up in advance, not long before he was born.  Kept all this time "for the next one"...checking the expiry to discover that it will be out of date before the "next one" comes along. Mocking my inability to conceive again.  Driving home just how long this room has been under dust sheets.  As if I could forget a single day.

After that I got angry, and that helped me keep going, pulling off more border...a mind numbingly tedious job, but my mind needed to by numb to do this. Just as I thought "I'd better keep a bit of this for his memory box", a little stretch, just enough to complete the pattern came off cleanly. Thanks sweetheart.  Mark came and joined me and we moved the furniture out.  I cleared out all my maternity clothes from the wardrobe (where they were heaped up and hidden from view through tears that first day we arrived back to the flat without him.)  The second gut-puch.  The maternity T-shirt I was wearing when we painted this room the first time.  A faded paint-smile I had painted over my tiny bump.  I didn't cry, I felt the lump rise, but I didn't cry. I remembered and I smiled at the memory.

I realised that for whatever reason I had kept all the correspondence to do with him.  From the hospital, from the funeral directors, from the stone masons...why? At the time I suppose I needed to keep everything that was anything to do with him.  It's all gone now. I don't need to read and re-read generic letters of condolence from the consultants. I don't need to recall the choices we had to make about lettering style for his stone, nor our choice of coffin...the train one of course, I don't need to see an invoice to remember that.

We finished clearing it all out, and began to paint.  That was surprisingly fine too...again, a mundane, practical task and I could detach from the emotion of what I was doing.  I managed to do something I can't normally do- I put it in a box in my mind and carried on with the job in hand.

Today we did the second coat, and put the furniture back. We have arranged it differently, it seemed right to do that. It's a different room now, same furniture, well that would always have been passed down....it's ready and waiting for a new baby. With traces of Bertie there too, his train, my faourite pooh bear quote "if there ever comes a day when we can't be together....keep me in your heart, I'll stay there forever" His memory box, his "Oglet" toy.

And now I am processing it all in my mind.  I am still torn. I am glad it is done, for many reasons. Either it will help the flat to sell, and if it does, I won't have any emotional attachment to that room, I won't have to leave his room behind.  Or, we will still be here with the next baby.  Well in that case, I won't have to do this task whilst pregnant, nor will I have to come to terms with bringing a different baby back to the room Bertie never came back to. It is different, and I needed it to be for a new baby.  But, there is no new baby, not yet. But, keeping it all the way it was, that had to change at some point didn't it? It is neutral now, doesn't look like a nursery except for the cot.  The changing table has been converted back to a regular set of drawers. The wardrobe is just a wardrobe unless you look inside it....That hurts, you know? That I don't need a nursery.  But I don't need a toddler's room either. We have no use for this room, it's a blank canvas waiting to be needed, waiting to be filled. Like my heart.

His room.  It's gone.......and I miss it already.

Thursday 18 April 2013

Staring at a blinking cursor

I'm struggling with what to write tonight.   What I do know is that I need to write something. I need to get this week off my chest....but I have no idea which way it will go. So I guess I will get started and what results will be nothing if not honest.  Well, you know me by now- so what's new.

My choice of background music I suppose tells me how it's going to go- I just felt an urge to play Precious Child, so I guess it's going to be tearful and hopefully cathartic.

So, my week. It's been a toughie. And that's putting it politely.  I hate coming here to moan, but my burden has just gotten one stone too heavy this week.  It started with the baby memorial service at the cathedral.  I'd been invited by a friend and wasn't sure...I hadn't been to one before as I had never felt ready, but decided this year I would like to go.  It was beautiful.  We lit candles, the names of all the babies were read out, poems, readings, songs and hymns.  Beautiful, but so hard. They chose the same reading we had at Bertie's thanksgiving service. Not too surprising, there really aren't many appropriate bible readings for babies who have died.  But at the end, the lump-in-the-throat-blow. The same hymn we had- my favorite. The one I could not sing at his service....could I sing it now? I did, through tears.  Perhaps I was meant to go and sing it.  Perhaps he wanted to hear me sing it.  I tried my best baby.

Monday.  Another busy peads clinic. Another 18 month old boy.  Another decision to make. I was free, he'd been waiting...I could ask a colleague...no, I can do this. I have to be able to do this. Call him in....he loves it....giggling.....drool on my hand....soft skin on his cheek....brown hair...thank God his eyes are blue...giggling....please stop giggling, I could deal with you crying so much easier......Older sibling "look mum, he loves it" ....I will never do this for Bertie...he will never giggle at me....oh God I'm going to cry...no...don't...put up the mask...block it out...just get them out of the room first.......  Made it... they're gone.. Meltdown.


Monday night. Housegroup. Encouragement night. Perfect timing- I needed it. I still need it. Beautiful words, friends using very different words to describe me than I would use for myself. Where I see despair, grief, sadness, moaning, depression, frustration, dissatisfaction, jealousy and resentment...they see love, smart, gentle, sensitive, humour, honesty, reliable.  It makes me cry to see those adjectives next to my name. They gave me bible quotes to uplift me...and they did, but they also frustrate me.  Yes, God has all these promises for me...and yet, here I am still so tormented. When is He going to start fulfilling them?  Even housegroup is a torment now.  My last safe place. My support network...it's become a double edged sword.

Wednesday.  I failed. Remember I posted a while back about preparing myself to meet the new baby when my colleague came in? That I felt I was ready to do it and it wouldn't be so bad? Well. I was wrong on that score too. She came in on Wednesday, wheeled the buggy into the office full of people.  Fortunately I was sat in a place that allowed me to make an immediate discreet exit without her noticing.  Split second decision- instinct. Fight or flight? I chose to run.  Too many people, too hard a week.  The same office I walked into all those months ago, for the first time after giving birth.....without my son. I held his funeral order of service and told them how I wished I was bringing him in to meet them.  My hands shook as I held the tea someone made me and I told them his story.  It all came flooding back in the few seconds it took me to decide to run as they all excitedly crowded round the pram. Can't do this. Not this week.  Will I ever?

Tonight. The rush of hormones that comes with another failed cycle. No 2013 baby for me. A third Christmas without a child.  More investigations.  Why can't I do this? What is wrong with me? Knowing I shouldn't blame myself....but I have to blame something.  I HAVE TO GET ANGRY!

Will I ever be able to go back to a normal life where I don't have to assess each situation in life and decide if I can cope with it? Will I ever stop having to deal with the meltdown when I judge it wrong?  Will I ever get to present my newborn to the world?

Will God ever give me more than words on a page to make me believe I will?

Isaiah 30:18 "Yet the Lord longs to be gracious to you; therefore he will rise up to show you compassion.  For the Lord is a God of justice.  Blessed are all who wait for him!" 

My God. Where is the justice in this never ending torment? How long must I wait?  Can't you show grace and compassion to this broken soul in the way I long for, beg for, need?

And itunes decides to play tears in heaven as I sign off. How very apt.

Tuesday 9 April 2013

Something to tell myself every day..

"Research has shown that the psychological stress experienced by women with infertility is similar to that of women coping with illnesses like cancer, HIV, and chronic pain. Infertility is not an easy disease to cope with.
To make things worse, you may hear from friends or family that your anxiety is causing the infertility. But this is not true. While researchers once thought that stress caused infertility, more recent studies do not make this connection."

from: http://infertility.about.com/od/copingwithinfertility/a/copestress.htm

Saturday 6 April 2013

I feel like a skittle in a bowling alley.

I keep on getting picked up, by God, by friends and family, by myself, just to be knocked down again. It's wearing me out, wearing me down. Every time I think I can't take any more, something else comes along-a new hurdle for us, another person's good news..... And it's turning me into a person I don't want to be: Bitter. Jealous. Tired. Lifeless. Desparate. Sad. Just so sad.

Ever feel like you are living out a novel? That this cannot possibly be your life, but it is. Like you couldn't actually write this? That's how I feel. Every new chapter is a miserable one. Where's my happy chapter? I keep turning the pages thinking it has to be the next one, but it isn't.  Every chapter contains somebody else's joy alongside my disappointment, frustration and grief.  18months since my son died. 18 months and no rainbow for me, but I have congratulated 15 other women on their pregnancies. Nearly one a month. Have you any idea how it makes me feel? A monthly dose of salt rubbed right into my gaping wound.....I am sorry if any of them read this and it upsets them. I am happy for them, I've said it before. I do not wish any of them anything but happiness and success.  It's just that I want happiness and success too.  All I want in life is to be a mummy again.  I do not understand why I am being denied it.  Not only denied it, but tormented by so many others being given the desire of my heart.

I wonder if I should just lower my expectations from life.  Roll away into the gulley so I don't get picked up with the other skittles. Becuase, actually, living in the gulley is far less painful than continually being knocked down by bowling balls.

Wednesday 3 April 2013

Thanks Goodness, someone, somewhere understands....

I found this leaftlet this morning whilst desparately looking for something to help me.  Rings so very true with me. I'm going to copy a few sections of it, for several reasons. 1. So I can come back to this page and read it again when I need to remember that the way I am feeling is NORMAL. 2. So my family and friends can see it and realise that the way I am feeling is NORMAL. 3. So other parents in a similar situation to me can read it and realise the way they are feeling is NORMAL.


 Words in brackets are mine.  Find the full leaflet here

"Losing a baby after fertility problems, or having trouble
getting pregnant again after a miscarriage or an ectopic
pregnancy, (or baby loss) can feel impossible to cope with.
Pregnancy loss and infertility can both be devastating.
But when you are going through both at the same time,
it can leave you feeling desperate.

The combination of (baby loss) and
infertility can be very difficult to bear.
Everyone reacts differently and there
is no right or wrong way to feel or to
deal with what has happened.
You might feel lonely, (yes)  angry, (yes) guilty, (oh yes)
helpless (definately) or very down and
depressed. (so it would seem) You may be asking why this
had to happen to you. (yes) And you may
wonder whether things will ever get
better. (every day)
You may be wondering whether what’s
happened is somehow your fault, or
your partner’s. It’s very unlikely that
anything you did or didn’t do caused
either your (loss) or your
problems getting pregnant.
Sadly, this
can happen even if you do all the right
things
(which is why it's so damn unfair) You might feel angry about what
happened.And you may find yourself
getting angry at people around you
who don’t seem to have a problem
getting pregnant and having babies. (Something I am struggling with very much, and hate myself for it, adding to my burden) It’s
only natural to feel jealous and you
may resent them. (that is a relief to see, but small comfort)

Family, friends and colleagues may not
know what to say or how to help.  (would I know if it were the other way around?)
They may not talk about what has
happened at all. Sometimes they think
this is for the best as they are trying
not to remind you about it. (it doens't work that way folks)
They might say things that are meant
to cheer you up, but are actually
upsetting – for example “at least you
know you can get pregnant”. (anything starting with "at least..." is often upsetting, there is no "at least" about it. My baby is dead. No. Silver. Lining.)
Sadly, some people may never really
understand how difficult this is for you. (which is why I wear my heart on my sleeve....well, on my blog)

One of the hardest things about living
with infertility and (baby loss) is not
knowing if you will ever be a parent.
Even so, you may feel positive about
continuing to try for a baby, whether
or not you need treatment.
On the other hand, you may wonder
how long you should keep trying, and
whether you can cope with the
possibility of more disappointment."



Can't cope with the dissappointment...and yet can't contemplete giving up either. If we give up, then we never get our dream....how would that help? So we are stuck.  It is nice to know my feelings are normal, but I hate this new normal so much. I hate this new life, this....existence.  Knowing that's normal doesn't make me any happier does it? It doesn't change a thing.